Posts Tagged Autism Spectrum Disorders

A sponsor for Kong

Kong writing
This is Kong. The boy is seven years old and has been visiting the Vientiane Autism Center since March 2010. Kong’s parents are glad that Kong is well taken care of and that he is making progress. When Kong first came to the VAC, he could not speak. Now he is able to repeat monosyllabic words and knows his own name. Recently, he has started to say two-syllabic expressions. Kong is having difficulties keeping his moods under control. If things don’t go according to his wishes, he tends to take out his anger on the other children. On the other hand he is fascinated by the keyboard which he explores patiently for long periods of time. The teachers are now trying to teach him in music.

His parents have been struggling since the beginning to afford the EUR 220 every month for his place at the VAC, especially since Kong has two younger siblings. Kong’s father works for a ministry, his mother teaches at a university. Together they are earning less than EUR 500. When the first grants from the AfA scholarship fund were approved in January 2012, Kong was not one of them. Other cases were even more urgent. In September 2012 Kong’s parents got the approval to also pay 25% less. Around the end of the year it became difficult when the reserves of the scholarship fund were depleted. AfA intensified its fundraising efforts particularly in Laos and also received requests if sponsorships for individual children were possible. We did not hesitate and that’s why Kong now has a new sponsor, Tatjana, who currently lives in the Netherlands and donates EUR 50 a month to AfA. Tatjana is also helping us to translate our web-texts into English. A big Thank you goes to the Netherlands. Here´s to a continued cooperation!

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AfA at 2nd Congress of AAN in Brunei

First of all a very big THANK YOU to SMARTER Brunei, the organiser of the 2nd Congress of the ASEAN Autism Network (AAN). It was a very successful congress and the beginning of a new phase in AAN’s development!
It was also great to meet all the friends from our region again and start planning joint activities for the coming two years.
But step by step: On the evening of 26.04.13 the first ASEAN Autism Youth Camp was officially opened. Unfortunately prohibitive ticket prices prevented us from sending kids from Laos to the camp we were very surprised to see Laos well represented. Autistic children from SMARTER Brunei and their teachers prepared a very nice Lao bungalow with an astonishing picture of the That Luang, the famous Lao stupa. We had big fun in teaching the Lao way of greeting and singing and dancing the Lam-Vong, the traditional Lao dance.
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The official opening of the Congress was honoured by the presence of HRH Prince Hadji Abdul Azim of Brunei Darussalam. Booths of all participating countries in Brunei’s main shopping mall attracted many visitors.
During the congress we could share experiences and knowledge about autism among all our members with special focus on early intervention. Oddy’s Quest, a Fashion Theater of children and young adults with autism and their friends, literally rocked the huge Songket Ballroom at Rizqun Hotel.
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Visits to pilot inclusive education schools and the early intervention and the vocational training centers of our host, SMARTER Brunei did not just give an input into the huge wealth of experience of SMARTER but also a lot of ideas for our own development.
Not to forget that AfA President Mrs. Viengsam Soinxay became member of AAN’s Executive Board and is presiding over the Research and Development Committee. We started working on definition of autism and standardised screening procedures a the most pressing topics right at the congress.
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The next time we will meet 2015, in Kuala Lumpur (Malaysia). The upcoming host invited us also to start work on another huge project as the Malaysian National Autism Society is going to organise another first: the first ASEAN Autism Sport Games. Training has started already.

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Great Day for Autism in Laos

When the TV presenter suddenly stopped the live broadcast at the side of the stage, the crowd dispersed. No closing speech, no final words of thanks to all the tireless volunteers and the many donors. All this despite the fact that Friday, 29 March had gone so well. In the morning, Minister for Health, Professor Dr Eksavang Vongvichit had seen about 200 participants off onto the “March for Autism”, throughout the whole day people visited the information booth of the Association for Autism in the National Culture Hall and in the evening about 1000 people came to see the benefit concert in the big hall. Telephone calls proved that even in the USA people were watching the performance of the children of the Vientiane Autism Center and witnessing the premiere of Aluna’s new song “In your arms” which had been exclusively written for our association.
Half of the association’s board sat together until 1 a.m. counting the cash proceeds of the evening. We received almost 61 million Kip (6000 EUR). In the days after the concert the workload did not seem to decrease as donations kept coming in. On 11 April the board made the final calculations: in Laos donations were received in the amount of 121, 979, 000 Kip (ca. 12,000 EUR). The sale of tickets and souvenirs resulted in a further 14.3 million kip. Costs involved with organizing the World Autism Awareness Day ran to a total of 87,171,000 Kip. 40.6 million of which was financed by our joint project with CRS, money we also used for having 650 polo- and t-shirts made along with promotion and decoration costs. Most of the artists performed for free and we received special rates on the location, TV broadcast and event management. After the deduction of all costs we are left with a grand total of 89,801,000 Kip (nearly 9,000 EUR). In addition to this we have been receiving donations to our European accounts.
Even bigger than the financial success is the awareness which this day raised for us and the topic autism in general. Various Laotian media outlets reported on autism in unprecedented depth; the many people who visited the various events of the day showed a strong interest and disseminated information further. In the first week after the concert alone we had ten families visit us to introduce their children whom they now suspect to be autistic.
Altogether it was a highly successful day for the Association for Autism which would never have been possible without the strong support of many helpers. This is why we would like to take the opportunity here to say what we did not get a chance to say in the late evening of 29 March: A huge Thank You to everyone who contributed to this success in front of, on and behind the stage! Thank you to all donors in Laos and everywhere else in the world!
Minister of Health Prof.Dr. Eksavang Vongvichit opens the WALK FORAUTISM
Tired after the walk
Performance of VAC kids

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Ein großer Tag für Autismus in Laos

Als die Fernsehmoderatorin plötzlich am Bühnenrand die Live-Übertragung beendete, liefen alle auseinander. Keine Schlussrede mehr, kein großer Dank an alle unermüdlichen Helfer und die vielen Spender. Dabei war der Freitag, der 29. März 2013, so großartig gelaufen. Am Morgen hatte Gesundheitsminister Prof. Dr. Eksavang Vongvichit rund 200 Teilnehmer auf den Marsch für Autismus geschickt, den ganzen Tag über besuchten Menschen den Info-Stand des Autismusverbandes im Kulturpalast und am Abend verfolgten rund 1.000 Besucher das Benefizkonzert im großen Saal. Telefonanrufe zeugten davon, dass selbst in den USA Menschen vor den Fernsehgeräten den Auftritt der Kinder vom Autismus-Zentrum verfolgten und die öffentliche Premiere von Alunas neuem Song “In Your Arms”, eigens für unseren Verband geschrieben, erlebten. Die Hälfte des Vorstands saß noch bis ein Uhr morgens beisammen und zählte die Bareinnahmen des Abends. Es kamen knapp 61 Millionen Kip (6.000 Euro) zusammen. In den nächsten Tagen wurde die Arbeit eher mehr als weniger, denn die Spenden rissen nicht ab. Am 11. April schließlich zog der Vorstand Bilanz: in Laos erhielten wir Spenden in Höhe von 121.979.000 Kip (ca. 12.000 Euro). Der Verkauf von Eintrittskarten und Souvenirs brachte weitere 14,3 Millionen Kip. Dem stehen Ausgaben für den World Autism Awareness Day von insgesamt 87.171.000 Kip gegenüber. 40,6 Millionen davon, darunter die Anfertigung von 650 Polo- und T-Shirts, Werbe- und Dekorationskosten wurden aus unserem Projekt mit CRS finanziert. Die meisten Künstler traten kostenlos auf, Saalmiete, Fernsehübertragung und Event Management erhielten wir zu Vorzugspreisen. Bleibt nach allen Rechnungen ein Überschuss von 89.801.000 Kip (knapp 9.000 Euro). Hinzu kommen weitere Spenden auf unsere Konten in Europa.
Doch größer als der finanzielle Erfolg ist die große Beachtung, die uns und dem Thema Autismus dieser Tag brachte. Über Autismus wurde in vielen Medien von Laos in nie gekannter Ausführlichkeit berichtet, die vielen Menschen, die die Veranstaltungen des Tages besuchten, zeigten großes Interesse und trugen Informationen weiter. Allein in der ersten Woche nach dem Konzert kamen zehn Familien zu uns, um ihre Kinder, bei denen sie nun Autismus vermuten, vorzustellen.
Alles in allem ein grandioser Tag für Association for Autism, der nur möglich wurde Dank der großen Untestützung vieler Helfer. Deshalb holen wir hier nach, was am späten Abend des 29. März ein wenig unterging: Allen, die vor, auf und hinter der Bühne mit zu diesem Erfolg beigetragen haben, ein riesiges Dankeschön. Dank allen Spendern in Laos und sonst wo in der Welt.

Minister of Health Prof.Dr. Eksavang Vongvichit opens the WALK FORAUTISM
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Performance of VAC kids

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World Autism Awareness Day celebrated in Vientiane

We did it!
One year after officially registering Association for Autism we took the initiative to start something big. And it turned out big. About 200 people joined our WALK FOR AUTISM on 29.03.2013 in Vientiane’s Chao Anou Park.
Walf for Autism Vientiane 2013
The evening saw much more people joining into the Charity Concert at National Culture Hall when Lao pop star Aluna presented her especially for this event written song “In Your Arms”. The performance of VAC’s children was big fun for the kids and the audience and emphasised on the abilities of children with autism. Donations kept coming in the whole evening and telephone calls from as far as Canada and the USA confirmed that we made an impression indeed.
Kids of VAC perform Gangnam Style

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World Autism Awareness Day 2013

Poster Autism Awareness Day 290313

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Getting friends from everywhere

The woman is sitting on the floor and is stroking with a massage brush over the boy’s arm in calm, constant movements. Four young women are sitting next to her and are following each of her moves with great attention. The woman’s name is Joan, she is from the USA and she is a very experienced occupational therapist.
Joan spent one month working as a volunteer at the VAC. During that time she taught the teachers in a patient and vivid manner how they can even better address the developmental needs of children with autism.
At the VAC, Joan quickly teamed up with Karina, a special education teacher from Switzerland, who, on a voluntary basis, has been supporting mainly the training and further education of our teaching staff for the past six months. The positive outcomes of their joined efforts are already visible at the VAC. Karina is now focusing on teaching the basics of autism and the resulting pedagogical approaches for a successful education process. She is being supported by the special education teachers Khu Or and Khu Ae from Thailand.
All these efforts are generating great interest among our teachers who are full of enthusiasm for the cause. But even here we are facing challenges. We keep on losing qualified teaching personnel; in recent times this is also due to the long overdue increase in teachers’ salaries in the public school system. Now we feel the pressure on us to catch up although our current financial situation does not allow us to do so. On the other hand the list of donors is getting longer and longer what is greatly improving our confidence. Special thanks to the Buhnrain school in Zurich where a class donated money for our purpose.

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Freunde gibt es überall

Die Frau sitzt auf dem Boden und streicht mit einer Massagebürste in ruhigen, stetigen Bewegungen über den Arm des Jungen. Vier junge Frauen sitzen neben ihr und folgen jeder Bewegung aufmerksam. Die Frau heißt Joan, kommt aus den USA und ist eine sehr erfahrene Ergotherapeutin. Einen Monat lang hat sie als Freiwillige am VAC gearbeitet und vor allem den Lehrern geduldig und anschaulich vermittelt, wie sie noch besser auf die individuellen Bedürfnisse in der Entwicklung von Kindern mit Autismus eingehen können.
Im VAC fand Joan sehr schnell mit Karina zusammen, eine Sonderschulerzieherin, oder Heilpädagogin wie es in ihrer Schweizer Heimat heißt, die seit einem halben Jahr vor allem die Aus- und Weiterbildung unserer Lehrkräfte – auf freiwilliger Basis – unterstützt. Gemeinsam haben sie das VAC schon jetzt ein gutes Stück vorangebracht. Karina konzentriert sich nun auf die Vermittlung von Grundlagen des Autismus und der daraus folgenden pädagogischen Ansätze für erfolgreiche Bildungsarbeit. Unterstützt wird sie von den thailändischen Sonderschulpädagogen Khu Or und Khu Ae.
All diese Bemühungen stoßen auf großes Interesse unserer Lehrer, die voller Enthusiasmus bei der Sache sind. Doch auch hier geht es nicht ohne Probleme. Immer wieder verlieren wir qualifiziertes Personal, in jüngster Zeit auch, weil der Staat die längst fällige Erhöhung der Lehrergehälter wahr gemacht hat. Nun stehen auch wir in der Pflicht, obwohl die augenblickliche finanzielle Situation dies gar nicht zulässt.
Andererseits wird die Liste unserer Spender immer länger. Das macht uns zuversichtlich. Ein besonderer Dank an die Buhnrainschule in Zürich, wo eine Schulklasse für unsere Kinder gespendet hat.

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Konzert für AfA

Seit 1989 wird der 2. April als Welt-Autismus-Tag begangen, seit 2008 sogar mit offizieller Resolution der UNO-Vollversammlung. Dass der Internationale Kinderbuchtag auf das gleiche Datum fällt, ist mehr als ein Omen: wir wollen vor allem Zugang zu Bildung für unsere anders entwickelten Kinder. In Laos begehen wir den Tag dieses Jahr ein wenig vorfristig, dafür aber umso intensiver. Unsere Aktionen konzentrieren sich auf Freitag, den 29. März. Am frühen Morgen werden wir einen “Marsch für Autismus” durchführen, mit Start und Ziel am Kulturpalast in der laotischen Hauptstadt Vientiane (Treffen 06:30 Uhr). Den ganzen Tag über ist im Foyer des Kulturhauses eine Ausstellung über unsere Aktivitäten zu sehen. AfA und andere Behindertenorganisationen bieten Souvenirs und selbst gefertigte Produkte zum Kauf. Ab 19:00 Uhr startet dann das Wohltätigkeitskonzert, zu dem bereits viele namhafte laotische Künstler ihre Zusage gegeben haben. Auch unsere Kinder wechseln dann vom Garten des VAC auf die gr0ß3 Bühne. Das Konzert soll von Lao Star TV live übertragen werden. Karten werden im Vorverkauf und an der Abendkasse erhältlich sein.
Wir freuen uns ganz besonders, dass wir die diesjährigen Veranstaltungen gemeinsam mit der Lao Business Women’s Association, dem Laotischen Journalistenverband und der Laotischen Handwerksvereinigung (Lao Handicraft Association) organisieren können, die auch eine Reihe von Gästen einladen. Unterstützt wird die Durchführung des diesjährigen Welt-Autismus-Tages aus Mitteln eines Projektes von AfA mit Catholic Relief Services (CRS) aus den USA.
Wir bauen darauf, dass dieser Tag wesentlich dazu beitragen wird, Autismus in Laos besser bekannt zu machen. Wir hoffen natürlich sehr, dass die Veranstaltungen am 29.März auch finanziell erfolgreich sein werden. Der AfA-Vorstand hat beschlossen, 70% der Einkünfte dem Stipendienfonds zu Verfügung zu stellen, durch den der Zugang zu Bildung für autistische Kinder aus Familien mit niedrigerem Einkommen unterstützt wird. 20% der Einkünfte werden gezielt für die Qualifizierung von Lehrkräften eingesetzt und 10% werden der AfA-Geschäftsstelle zur Finanzierung laufender Ausgaben zur Verfügung gestellt. Im nächsten Newsletter berichten wir ausführlich über die Ergebnisse des Tages.

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Charity Concert for AfA

Since 1989 the 2nd of April has been celebrated as World Autism Awareness Day, being confirmed by an official resolution of the UN General Assembly in 2008. That the International Children’s Book Day falls on the same day is more than an omen: what we are pursuing more than anything is access to education for our differently developed children. In Laos, we will be celebrating the day this year a little early but all the more intensely. Our actions are focused on Friday, 29 March. Early in the morning we will set out on a ”Walk for Autism”. This will start and finish at the Lao National Culture Hall in the capital Vientiane (meet-up at 6.30 a.m.). For the whole day an exhibition of our activities will be on display in the lobby of the National Culture Hall. AfA and other disabled peoples organizations will be offering souvenirs and self-made products for sale. At 7 p.m. our benefit concert will start; many well-known Laotian artists have already agreed to participate. Our kids too will switch from VAC garden to the big stage. Lao Star TV will broadcast the concert live. Tickets will be available for sale in advance and at the door.
We are particularly pleased to organize this year’s events together with the Lao Business Women’s Association, the Lao Journalists Association and the Lao Handicraft Association which will also be inviting a number of guests. The financing of this year´s event will be supported by a joint project of AfA and Catholic Relief Services (CRS) from the USA.
We have strong hopes that this day will play a key role in making Autism more known in Laos. Needless to say, we are also hoping for a financial success of the events on 29 March. The AfA Board has decided to put 70% of the proceeds towards the scholarship fund which supports access to education for autistic children from low-income families. 20% of the proceeds will be exclusively used for the qualification of teaching personnel and 10% will be assigned to the AfA office to cover current expenses.
Our next newsletter will include an extensive report on the events of the day.

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